Below you will find resources for those with epilepsy and their family members. It will be designed for those newly diagnosed, as well as seasoned veterans. I am always interested in finding new resources! Therefore, please message me with any websites that you may find particularly interesting or helpful!
- Are you looking for a community of over 7000+ people with some connection to epilepsy?
- r/Epilepsy is an amazing forum which exists to share ideas and answer questions. It is a place to vent, ask questions, and receive support.
- You will find people with epilepsy, medical professionals, and family and friends of those with epilepsy who provide support, answer questions, and share experiences.
- One of the broadest and most coordinated organizations for those with mental health issues and their families. This organization has affiliations in areas around the country, works to enact change at the government and local level, and utilizes volunteers to help carry out their message. They strive to educate, advocate, and destigmatize mental illness.
- Find your local NAMI!
- Education NAMI offers a wide-variety of lectures/classes for those with mental illness.
- Get involved! NAMI suggests multiple ways in which you can help spread there message.
- If you or a loved one is ever in need of assistance, you can call the NAMI Hotline: 800-950-NAMI
- If in a crisis: You can text NAMI to 741-741 and speak to a crisis counselor 24/7 through text message
- There are many factors that contribute to feeling suicidal, however above all is depression. People with epilepsy are at a significantly higher risk of suffering from depression. This hotline provides a 24/7, confidential means of speaking to a counselor.
- Their phone number is 1-800-273-8255
- They even have an online chat option if you feel more comfortable typing your thoughts.